Thursday, 31 January 2013

Sick And Tired of Being Sick And Tired!!!

Sorry it's been so long since I have written anything.  I have had a rough couple of weeks and every time I thought, "I have to update my blog tomorrow", tomorrow would come and I would still feel crappy!  So, that is why I haven't written.

My last entry was letting everyone know that I had to go to emergency because of a high fever.  I have been fighting something ever since!  I have had a high fever on an off for the past week, chills, headache, bloody nose, body aches, racing heart beat, then I developed this cough that doesn't produce anything, it's just there.  I've also been having shortness of breath and wake up numerous times a night gasping for a breath.  I have been feeling just so crappy it sucks!

Last Friday was day 13 after receiving the Neulasta shot and the pain hit me.  Obviously the Claritin and the change up with my steroids didn't help but only prolonged the side effects of the Neulasta.  I woke early Friday morning and once again, my legs and feet felt like they were going to explode!  It is the most excruciating pain...I can't even describe it to you...other than this, think of your bones breaking and slowly trying to pierce your skin...it's just terrible.  Jason gave me two Morphine pills and they were not working at all.  So, Jason texted his brother to see if he could give me a third Morphine....Scott said it was ok so I was given the third Morphine.  After about an hour, the effects from the pills hit me....I basically slept for the entire day!  I woke with a cramping pain in my left leg...you know that feeling when you are getting a muscle spasm in your foot and your toes separate and pain radiates in the arch of your foot?....that was what I was feeling and my foot was warm to the touch and swelling.  I think it spasmed during the pain but I didn't realize it!  To top it all off, my sister arrived on the Thursday night for the weekend, and she had to see me in that pain.  I am sure it scared the shit out of her...in fact, I know it did!  Poor Britt, not something I wanted her to witness!

Since then, I have been in emergency twice, gone through numerous tests (CT scans, X-rays, blood tests, urine tests, etc.)  Like I said earlier, it's been a rough couple of weeks.  So, I went to see my family doctor (hoping to bypass emergency) and he checked me over and "thinks" I am fighting a virus.  He prescribed antibiotics and pills for influenza.  He also ordered a chest x-ray and blood work.  After leaving his office, I went for my chest x-ray and was hoping to have my blood work done but the clinic was closed.  I went home and started my pills.  That night, my fever spiked at 102 and I was feeling worse.  Jason woke me up early yesterday and got the kids up too.  He fed the kids and got them ready for school and took them to the neighbors.  We left shortly after and headed to emergency at Credit Valley Hospital.  I am getting so tired of being sick!

Once we arrived at emergency, they fast tracked my chart and took me into the assessment room.  The doctor on call was awesome.  When he came in to see me, his first words were, "I think I know you better than you know yourself!  I just read your medical history and all your charts."  He then proceeded to tell me what he knew, starting from my diagnosis.  He was very thorough!  He ordered another chest x-ray to rule out Pneumonia, blood work to rule out Neutropenia and Blood clots.  My chest x-ray came back clear and my neutrophils (WBC) were high but the test he ran for blood clots, came back positive.  Cancer patients tend to have a higher risk of developing blood clots, especially after Chemo.  So, because the blood test came back positive, they now had to look for the clot.  He sent me for a CT of my lungs (the most common place for a clot) but they couldn't see anything.  It's very frustrating when you are feeling like crap and there is no explanation for it!  So, I guess I just have a really bad virus that I am fighting....and since my system is already so compromised, it's taking extra long and it's harder for me to get rid of it!  I see my oncologist tomorrow for my Herceptin infusion and if I am not feeling any better, I am going to ask her to admit me and run every test to figure out what I have!  I am not messing with this any more!!!

During all this, I did have my appointment with the Radiation team.  I met the technicians that would be administering my Radiation.  They were all great!  I also received my lovely tattoos, which will be the points the technicians will use each time to line me up with the radiation beam.  They have to ensure they are administering my radiation in the exact same area every day.  So, now that is complete and I start my treatments on February 11th.  I just hope I am feeling better before then! 

So, as you can see....I have had a crazy couple of weeks! 

Be positive, be strong and continue to pray for me!

Wednesday, 23 January 2013

Emergency Room Bound!

So I was right...I'm really getting the hang of feeling out my symptoms and recognizing when something just isn't right with my body.  You really start to "tune" into your body and what it is trying to tell you.

Monday I told all of you that I really was feeling rotten and knew that something wasn't right.  Around 5pm I was feeling really terrible and felt like I had fever/chills.  I had a shower and thought that might bring me around but it didn't.  I took my temperature and had a fever of 99.7...which to most people is nothing but for someone going through Chemo, it can be very dangerous if you have a fever.  Having a high fever, means that you are fighting an infection.  Most people take Tylenol and drink lots of fluids to bring it down and within a few days, they are on the mend.  Well, when I get a fever...yes I am fighting an infection but I can also become very sick and in most cases would end up in the hospital on antibiotics to try to fight what ever it is that I need to fight.  Also, because my WBC are low (my good blood fighters for infection) any infection/sickness can become very serious, very quickly.  I called Jason right away and he started home from work.  Within 1/2 hour, my temperature was over 100 and getting higher and I was feeling worse.  Jason arrived home and we took the kids to the neighbors and headed to the emergency room at Credit Valley Hospital.  After 4.5 hours in emergency, a chest x-ray (to check for pneumonia), blood work and a urinalysis...the doctor told me that everything was clear but that I may be fighting an upper respiratory infection.  They gave me some IV fluids and sent me on my way.   Today, I am coming around.  I have a bit of a cough so I know there was something there...but I am feeling better every day on my own (without additional drugs)!

So, yesterday was day 10!!!  As you all know, I tried to change up a few things this go around with the Neulasta shot.   I increased my water intake, but most importantly, started taking Claritin on Saturday.  I do a lot of reading and on most Cancer websites, some people avoid severe bone pain when they take Claritin after the Neulasta or Neupogen shots.  I had medium pain yesterday but nothing near what it was last time.  I believe the Claritin worked for me!  I didn't have to take any pain medication during the day...only at night to try to sleep a little better and potentially keep major side effects to a minimum!  So, am I past the worst part of pain with this treatment...I certainly hope so!  I rested all day today and I can tell that I am a little better than I was this morning.  I think I am past the worst part.  Today was my last day for Claritin so we will see what tomorrow brings!  I am optimistic that it can only go up from here!!

Be positive, be strong and continue to pray for those people fighting the big C!


Monday, 21 January 2013

Just An Update!

Oh, I can tell this isn't going to be good!  I feeling like I have been hit by a MAC truck...it's such a terrible feeling!  I haven't had too much pain...just aches and sore joints...but I am so tired, I can barely keep my head up.

Yesterday, the kids started their swimming lessons so we got up early and took Keil first (Cole's lesson was in the afternoon).  As soon as I walked into the pool area, I knew I was going to have to leave because of the heat.  I managed to stay for most of Keil's class, leaving to cool off every few minutes and drinking tons of water.  We came home and it hit me like a ton of bricks....I had to go lay down for an hour or two and by the time I woke up, Jason was heading out the door with Cole.  I managed to get something to eat and just sat on the couch watching TV.  I was so lethargic and just an overall feeling of not being well.  I was worried that the side effects from the Neulasta might have been setting in because I finished my steroids a day earlier than last treatment.  I also thought it might be due to the fact that I haven't been sleeping well at all...this really sucks!

Last night, I decided to take a pain pill before bed...which I took around 8:30 and crashed!  In fact, I was in bed before the boys!!  I am so glad that I took the pain pill, it helped me to get some sleep and be totally relaxed.  My mind did do some racing and dreaming but my body was too heavy to even notice that much!  Now, my body is crazy weak...I can barely move...not in pain, just so weak...and I have the kids home for a PA day...thank goodness they can fend for themselves!  I just know that tonight is not going to be good, based on the way that I am feeling right now.   I am going to take my pain meds before I go to bed again and see if that helps at all...at least it will give me another night of sleeping a little better!

Be positive, be strong and please pray...especially for a family friend, Sylvia Gregory who is in surgery today having a brain tumor removed.  She had breast cancer that metastasized to her brain.  May God protect her and keep her from harm!  


Thursday, 17 January 2013

Where's My Body?

Still feeling tired and weak from my last treatment.  I have been having minor aches and pains but nothing like the last treatment.  Although, the pain didn't hit me until day 10 last time so I still have a few days left before the mayhem sets in!  I am planning to take some Claritin starting on Saturday to see if I can change some of the side effects from the Neulasta shot.   I haven't been sleeping well because of all the steroids in my system...they make me toss and turn all night.  I do have sleeping pills but I am so tired of pumping drugs into my system, I just want to be free of it all!

I am also feeling so out of touch with my body.  It's really hard to explain to someone that hasn't gone through Cancer.  Everyone keeps telling me...oh you look good, you'll get the weight off...don't worry!  But being a woman, it's hard to get up and look at yourself in the mirror and not really know who is staring back at you.  My face is full, I have little to no eyelashes, my eyebrows have to be penciled in and not to mention my stomach and back are looking like I am 7 months pregnant!  I always took pride in the way that I looked.  I know, I just have to get healthy and then everything else will fall into place...but this has got to be one of the worst parts of going through Cancer...the changes in your body!  Especially when you don't have a lot of control over what is happening.  I know, I know...health has got to be my main priority! 

I started reading a bit about side effects from the medication Tamoxifen (the drug that I will need to take for 5 years because I am Estrogen+ and Progesterone+).  I will be starting this drug in approximately 4 weeks and it will put me into early menopause.  Then, I will finish the drug and my body will go through menopause again...on it's own natural course!  Wow, menopause....twice in one life time!!  Anyway, back to my reading...on the breast cancer website (which I frequent) a lot of the women that started Tamoxifen have gained any where from 30lbs to 50lbs!   Good Lord...what else could happen!!  Oh and not to mention, hot flashes, low libido, mood swings, bone aches and nausea.  I know I will get through it, as I always do...but I really just want to get my life back...minus all the side effects!  I am sharing a lot of this because I need to get it out and on paper!  It makes me feel better to write, as I have told all of you before...no matter how blunt I may be!   These are all true feelings that I feel could help someone going through this type of thing.  As much as it sucks some days...I have a lot of good days that I am very thankful for!  ...and that is where I will find my strength!

Be POSITIVE, be STRONG and PRAY!


Sunday, 13 January 2013

Wouldn't Ya Know!!

Throughout this Chemo journey not one of my kids got sick, even though the cold and flu was running wild though their school.  They washed and sanitized their hands like crazy...and they took (and continue to take) their vitamins every morning.

On Thursday, I had to keep Keil home because he woke up with a really sore throat and a nasty dry, barking cough.  By Friday, he still had the cough, but it was a lot better sounding...not so dry.  He is still coughing but the poor little guy will not come near me and he is always wearing his mask.  Now, Cole has come down with something.  Yesterday, he slept most of the day and had a fever.  Today he is a bit better but still fighting a sore throat, fever and just an overall feeling of not being well.  I just can't believe that we managed to last this long without getting sick and the weekend of my last treatment all hell breaks loose!  Poor Jason, doesn't know who to cater too...I just pray he stays well!  Thank goodness we have a spare bed in the basement...because that's where I will be heading for the next few days...only to hibernate until all this sickness is over with.

Otherwise, I am feeling pretty good today.  No pain (yet) and I have a good amount of energy.  I have tried to change some things up over this treatment.  I have increased my water intake by about 2L and I have started my "bowel" pills a little bit earlier than previous treatments.  I have also tried to change what I am eating.  You see, I always crave junk food after a treatment and I have decided to try to avoid those cravings...as hard as it is, I am making progress...although the Toblerone that is sitting beside me is looking mighty fine! LOL  I think the increase in water is really helping to flush all the toxins out of my body.  The nurses and doctors always told me how important it was to keep up my water intake but when your taste buds are gone and everything tastes like cardboard, it's kind of hard to quench your thirst with water!   But, I will do anything to avoid side effects like last time!

Jason is going to stay home with me for the next couple of days, only to be here for the boys so that I don't have to be exposed to any further sickness.  When my counts are so low, which they will be over the next few days, I am even more susceptible to viruses.  I did receive my Neulasta shot yesterday, which will take a few days to kick in the way that it should (hence the reason why the pain doesn't set in until about day 7 or 10) so it is very important for me to avoid getting sick!  I am very thankful for Jason's work to be letting him take the time to be home to take care of me.  They have been wonderful during this whole time, which takes a lot of pressure off Jason.

So, here's hoping my boys will be feeling much better soon and that Jason and I both avoid getting sick!  Fingers and toes crossed!!

Be positive, be strong and please pray for all of us fighting the fight!

Friday, 11 January 2013

6 Down 0 To Go!!!!!

Well, it's done, finished, complete!!!!  A very emotional day at the hospital!

We arrived for my appointment at 8:00am, registered and proceeded to have my blood work done.  Then on to meet with my nurse and doctor.  My blood counts were 5.8...the highest they have ever been since September!  I couldn't believe it...the angels were watching me for sure today!  Got through reviewing the side effects from last treatment and questions for Anna (my nurse) and got my follow up appointments booked.  Then on to Chemo...with excitement to finish my treatment with Joanne (my Chemo nurse)....only to find out she was in assessments today and wouldn't be administering my Chemo :(  bummer!  So, Nurse Karen called my name and on we went to start the very last drip of poison!

Everything was uneventful.  Jason and I talked and read a little...then did the count down of the last 1/2 hour together...constantly looking at the clock!  My IV finally buzzed and it was over...excitement, overwhelming emotion and relief!  Then Nurse Carol rounded up some of my nurses and on we went to  ring the "Chemo bell"!!  It's a bell located at the entrance of the Chemo unit that is rung when you finish your Chemo.  It's a very overwhelming and emotional ending!  I posted my video to let you see how emotional it was...everyone was crying.

I am home now resting and feeling ok but very tired.  The nurse will be here tomorrow afternoon to give me my final Neulasta shot...which I am praying I won't have too much pain from.  I will continue to take my steroids for the next week to try to avoid the pain and I have more of the "good drugs" to take on my day 10 or whenever my pain starts to hit.

My next appointment is to have my tattooing done for my radiation, on January 28th.  Then I have my Herceptin drip on February 1st and my Heart Scan on February 8th.  Radiation starts on February 11th.  I will also have a Liver MRI in around those dates...just a follow up to my last one that noted, what appears to be, hemangioma's on it.

Be positive, be strong and continue to pray! :)

This is a happy household tonight!


Thursday, 10 January 2013

My Life Long Friend!

Well, it's finally here...my last treatment is tomorrow and I just wanted to let you all know how I am feeling!

Very emotional...messages that I am getting from family and friends...phone calls, text messages!  I am just overwhelmed with emotion.  I have such a great group of friends and my family...what can I say...family is everything!  I can't seem to stop crying...just thinking about everything that I have been through and I can't believe I made it...through this phase anyway!  I am also thinking of everything that I have...a wonderful husband, two beautiful boys and some of the best friends on the planet! 

Last night, I had a long talk with my best friend of over 30 years!  We talked for over two hours and it seemed like only 20 minutes...we could have talked forever...well maybe not forever but for another couple of hours.  You see, Cara has been my best friend since I was 8.  Shortly after meeting her, I got hit by a car and it landed me in the hospital with a broken leg, scrapes, bruises and I was there for quite some time...Cara was one of my first visitors, taking me on long walks in the wheel chair, bringing me treats...and just making me laugh!  We always had a fun time as kids...and now as adults.  I could count on her then and I can count on her now.  Because as you all know, she took time out of her busy schedule to come up and take care of me again during my second treatment!  I think we are going to be old and living in the same old age complex....taking care of each other!  Cara, you are my light, my rock and the only friend that I can say I had for more than half my life!  I don't know what I would ever do without you!  I love you from the depths of my heart!

I want to take the time to thank all of you for being so supportive during the past few months.  All the food, emails, cards, phone calls, text messages and letters of hope...you are all wonderful people and I am glad you are in my life!

On to tomorrow!  Ladies and Gents...check your boobies...it may save your life!

Be positive, be strong and please pray for all the people that are fighting this fight!